I expected today to be quiet. Kate and I hanging out, taking down Christmas decorations while Guy rested and slept. That is pretty much how it went only because we are stuck in medical gridlock
This morning Guy seemed even less responsive, he was asleep most of the morning, and I don’t mean a restful sleep but tossing and turning, labored breathing, talking nonsense and grimacing. He was not interested in food or water. Kate and I decided I should call the Cancer Center and inquire about hospice. I didn’t think he was ready but decided an evaluation would be helpful. Well, they said insurance won’t pay for you to have hospice and still see your Dr. I certainly wasn’t ready to give up on treatment so we put that idea on hold and planned to see the Dr next week as scheduled.
As the day went on we realized Guy was not improving, no food or water, mostly asleep and still talking nonsense. He did develop this funny idea every time he woke up that he needed a shower. Rather than argue I just let him do it. He had 4 showers today. Kate gave him a kiss on the head and said he smelled wonderful!
I called the Cancer center again late in the day. I just don’t know what help he needs and from who? But it is apparent that he needs help. I spoke to Dr Lonergan, told him Guy’s symptoms and discussed options. We decided that starting hospice might offer some relief, if Guy improves then we can take him off hospice and he can see the Dr again and get more treatment. Of course by this time hospice has no availability till next Tuesday. Does any of this make sense??
Meanwhile Matt and Gwen arrived from Seattle. We had a nice dinner and laughed and told Guy stories (I cried some) He said he is a blessed man. I believe we are a blessed family. We feel so supported from friends around the world. It warms my sad heart to hear from all of you and know that you are holding him close in your hearts and prayers.
I am still working on getting a hospice evaluation sooner with some folks I know at the hospital. Stay tuned for tomorrow’s episode….of Cancer Sucks!